I’ve waited 10 years to type these words…

In September, I’ll be standing on stage at one of the top research hospitals in Canada, delivering a speech at The International Symposium on Pheochromocytoma.

TO THE ENTIRE SCIENTIFIC COMMUNITY.

A decade ago, I was misdiagnosed, dismissed, and given up on before I even had a chance. I was left alone to fight for my life.

I reached out to a rare tumor expert right here in Montreal, all those years ago – and now ISP is being held here. What a full circle moment!

More than 10 years later – I’ll be speaking amongst my team and the global experts for this disease. To discuss what we’ve learned, what’s worked, what didn’t, and how we can improve together…

What’s so special about this is that I’m not magically cured on the ‘other side’ of it standing in the sunshine. But my story as messy and imperfect as it’s been, it matters.

It’s never been easy for me. My story brings attention to the very real issues within rare disease care while shining a light on the dark spots as opportunities for change.

My survival AND stability is proof of what’s possible when we treat complex disease as a unified approach. Treating the person and not just one diagnosis. When we collect the right data, and have all the puzzle pieces…

We can change the way we treat this disease, improve quality of life, and have hope.

I didn’t choose to have pheochromocytoma.

But my hope is to remind everyone in that room why THEY chose to treat it.

Through heart palpitations and shaky hands, I promise I’ll make us so proud.

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WANT TO ATTEND FOR FREE?? Register HERE for a special session dedicated to patient education 🦓

come hear my speech at 11:10am! 🎤

followed by a research recap from THE one and only Dr. Karel Pacak

Click here for the full list of speakers.

Thank you so much to Pheo Para Alliance and CNETs for creating patient day within the symposium!

I am so truly grateful, I hope to see you there ❤

PheoVsFabulous