“Fabulous is your light, your smile, your energy, your positivity, your willfulness, your vitality, passion, excitement, beauty, laugh, and how you share it!” – Pheo VS Fabulous
My mission statement for this journey was to stay fabulous, never let it take this disease that away from me, and to find the good in every situation. Well, I can lose many pieces of me before anyone takes my ‘Fabulous’.
Hello my fabulous friends,
This is my very first post, my first time writing a blog, and my first time speaking freely about my personal journey with pheochromocytoma cancer…. and staying fabulous while doing it!
Pheo VS Fabulous was born from the promise that I would never let this disease take away the one thing I could control, and I’ve labeled that my fabulous. When I became ill I realized how much we take for granted, and it started with how day to day tasks are so challenging when you’re battling an illness like pheochromocytoma cancer, that’s when I decided I wouldn’t let it that away from me. It’s more than just looking a certain way, it’s about BEING fabulous, strong, and positive when you have every reason not to be.
The danger of something being so rare is that it goes undetected, unrecognized, and is one of the most misdiagnosed conditions. Leaving many of us undiagnosed, and looking for answers.
If you’re reading this, you might still be looking for some…
My goal is through sharing my vulnerabilities with all of you, finding the courage to share something so painfully personal, someone else may have less of a challenge in the future of being diagnosed, treated, and living with this disease, #pheochromocytoma – or any other ‘neuroendocrine cancers. #netcancer #raredisease
The idea is that the more I share, the more information there will be available for a disease where this is so much lacking. Every procedure, every test, every treatment I suffer through – I will continue to share my experiences so that others don’t have to keep grasping for answers like I did.
Although there is so much to cover… first off, pheo-chromo-cy-whatta?! We will get there darlings, I just want to say…
This blog is meant for awareness:
Awareness for a disease that only a handful of people in this massive universe know about, probably only because they were diagnosed
Awareness for a disease that affects only 1 in 1million people
and once it’s metastatic? 1 in 4.3 million
– Lucky us! 😉
Awareness for a disease that I am fighting everyday, that most people cannot even pronounce
I wish to share my journey, even the uncensored version, with all of you.
Even though I am absolutely fabulous (duh)… what I’m up against sure isn’t!
I will continue to fight this rare cancer, keep sharing my message on behalf of my fellow zebras, and no matter what happens I am going to stay absolutely fabulous while doing it!
pheo VS fabulous
Along with new and updated blog posts, you can find more permanent information in the ‘Menu’ drop down
I encourage anyone who wants to support me by using the following hashtags in spreading awareness
#pheovsfabulous #pheochromocytoma #mirandastrong
Facebook: Miranda Simard