I made it to the water…

If you asked me two months ago where I was going to be today, my answer would be very different than right now.

I’m a positive person, but when you can’t walk or talk … there’s a point where positivity and realism needs to be used with caution. Which is why we dream, and dream, and dream some more. Which is what I did.

They say a dream is a wish your heart makes, well my heart did a lot of wishing for me…. but it came true ❤️

When I was admitted into the hospital unable to speak or walk, with so much pain, little to no mental function, and almost none of myself left…. if you asked me where I’d be in two months, I wouldn’t have guessed how I got my wish, and how I’m able to write about it with all of the people I care about so much.

….But here I am, doing just that.

Isn’t it beautiful?

Not giving up?

Hope

What is it I always go on about?

I’ll never let this disease take my ‘Fabulous’, well it took a lot of pieces of me this time, but I still hung onto my fab so tight… the year leading up to this was hard. The hardest year so far, but I can honestly say that we didn’t once let that stop us from smiling, no matter how awful it got. That’s what got us through.

I can also say that I smiled through just about everything.

You have to.

Because for better or worse this disease isn’t going anywhere, so you have to make a decision. Live with it, or fight against it. Eventually people can lose a fight, but I can keep finding ways of living with cancer. Makes sense huh?

I think I’ve figured out this nasty little turd, shhhhhh!

I truly wanted to update everyone and tell you that for right now I’m feeling much better all things considered, I’m not running a marathon anytime soon but I made it to the water without the help of my wheelchair today and I haven’t done anything ‘crazy’ like that in a long time! 😂

The reason why I wanted to share this is because we’re far too hard on ourselves and we don’t celebrate the small stuff. I’ve come such a long way and I don’t ever recognize some major milestones even though they may seem like small ones. It’s about time we realize things like this may not come around again. So celebrate EVERYTHING!

And don’t forget that beautiful smile 😀!

I just wanted to share a bit of good news, I’m feeling MUCH better. I don’t know where I’ll be in the coming months, but as for right now…. I’ll take it. I have a long road ahead of me, but as long as I keep smiling, I’m sure my fabulous can get through anything.

Pheo VS FABULOUS

I am rare – Rare Disease Day

Although I would like to think that I use every day as an opportunity to make this disease a little more exposed, february 29th 2016 is rare disease day.

A day to remind the world that although rare… diseases like mine do in fact exist, and because they are rare, they don’t get any attention, and as a result – we suffer.

We suffer through misdiagnosis, delayed diagnosis, and lack of information when dealing with our rare conditions. We suffer through painful surgeries, lack of treatment options, and invasive trials, with no cure in the end. We suffer in silence.

February 29th is our day to make our voices heard, help me get a little bit louder.

I have pheochromocytoma cancer, adrenal insufficiency, I’m 25 years old, and I am rare.

Rare disease day, 2016

#mirandastrong #pheochromocytoma #netcancer #ai #zebra #rarediseaseday #pheovsfabulous

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