pheofabulous

Pheo VS Fabulous – Welcome!

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“Fabulous is your light, your smile, your energy, your positivity, your willfulness, your vitality, passion, excitement, beauty, laugh, and how you share it!” – Pheo VS Fabulous

My mission statement for this journey was to stay fabulous, never let it take this disease that away from me, and to find the good in every situation. Well, I can lose many pieces of me before anyone takes my ‘Fabulous’. 

Hello my fabulous friends,

This is my very first post, my first time writing a blog, and my first time speaking freely about my personal journey with pheochromocytoma cancer…. and staying fabulous while doing it!

Pheo VS Fabulous was born from the promise that I would never let this disease take away the one thing I could control, and I’ve labeled that my fabulous. When I became ill I realized how much we take for granted, and it started with how day to day tasks are so challenging when you’re battling an illness like pheochromocytoma cancer, that’s when I decided I wouldn’t let it that away from me. It’s more than just looking a certain way, it’s about BEING fabulous, strong, and positive when you have every reason not to be.

The danger of something being so rare is that it goes undetected, unrecognized, and is one of the most misdiagnosed conditions. Leaving many of us undiagnosed, and looking for answers.

If you’re reading this, you might still be looking for some…

My goal is through sharing my vulnerabilities with all of you, finding the courage to share something so painfully personal, someone else may have less of a challenge in the future of being diagnosed, treated, and living with this disease, #pheochromocytoma – or any other ‘neuroendocrine cancers. #netcancer  #raredisease

The idea is that the more I share, the more information there will be available for a disease where this is so much lacking. Every procedure, every test, every treatment I suffer through – I will continue to share my experiences so that others don’t have to keep grasping for answers like I did.

Although there is so much to cover… first off, pheo-chromo-cy-whatta?! We will get there darlings, I just want to say…

This blog is meant for awareness:

Awareness for a disease that only a handful of people in this massive universe know about, probably only because they were diagnosed

Awareness for a disease that affects only 1 in 1million people

and once it’s metastatic? 1 in 4.3 million

– Lucky us! 😉

Awareness for a disease that I am fighting everyday, that most people cannot even pronounce

I wish to share my journey, even the uncensored version, with all of you.

Even though I am absolutely fabulous (duh)… what I’m up against sure isn’t!

I will continue to fight this rare cancer, keep sharing my message on behalf of my fellow zebras, and no matter what happens I am going to stay absolutely fabulous while doing it!

pheo VS fabulous

Along with new and updated blog posts, you can find more permanent information in the ‘Menu’ drop down 

Stay tuned…

I encourage anyone who wants to support me by using the following hashtags in spreading awareness

#pheovsfabulous #pheochromocytoma #mirandastrong

Instagram: mirandasimard

Facebook: Miranda Simard

21 comments

  2. To Miranda and Serge.

    You two are the most fabulous people I know. I’m almost done reading your whole Blog and I can’t wait to read more. Pheo can shake in its boots. It has quite the fighter on its hands. We love you with all our hearts and you can be sure we will be cheering in your corner every step of the way.

    As of today, I will be signing all my emails with your hash tag.

    Prayers, hugs and kisses
    Pierre & Leslie

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  3. I am so impressed with your blog and I think you are so articulate you should be writing a book about your journey and the remarkable woman you are
    ps Stephany still talks about your trip to cuba and how amazing it was to share that with you
    thinking good thoughts kim Watson

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    • Kim, you have no idea how much that means to me. Any possible way I can share my message, I will. Every bit of positive energy and exposure is igniting my willingness to share such personal details about my condition, and I just want to make this easier for anyone else dealing with it. I will put every ounce of energy into building off of this platform! I am grateful to have life long friends like Stephany, thank you for your kind words 💜

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  5. I loved reading your blog I also had a pheo removed in 2010. You are FAB U LOUS! Thank you for bringing awareness and I LOVE your Barbie room.

    Liked by 1 person

    Reply

  6. Miranda,

    You are truly an inspiration to many people and I am excited to be reading your blog. You are such a beautiful and strong young lady. I love your Instagram posts, they are always keeping me positive and great full. Keep being you and your fabulous self xoxo. I always remember the good times we shared 🙂

    Liked by 1 person

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    • I’m so happy more and more people are understanding our disease and my struggle, but hope I can continue to inspire others and keep it uplifting for anyone reading 💛🌟! I too remember us being horrible at karaoke and even worse at mini golf… But we were pretty 😂😂😘 xoxoxox

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