I’ll keep this short and sweet, not like my usual posts 😂
I want to let you guys know that I’ve created a support group for patients & caregivers. Please refer to the main pheochromocytoma/paraganglioma for diagnosis support.
Over the years, support groups have gotten me through some tough times… and I thank you all for that.
My blog will remain unchanged, it’s still a resource for all! I will continue to post and share my experience. Friends, family, caregivers, patients. The group is just another extension of this but only for patients and caregivers.
It’s been requested and brought to my attention that sometimes google and existing support groups can seem intimidating and overwhelming. So I just wanted to make a group that speaks to those people that have been diagnosed and feel the need for support or want to share their experience with others.
I hope you’ll find the solace that I so craved while living with this disease, I think collectively we can learn a lot from one another.
I’ve been living with this disease since I was 19, I’m almost 30 and still fighting. I want to share my knowledge and help in any way I can.
I’ll link the group here:
Also, for future reference and sharing will be on my support page.
Enjoy! Love you all 🤍🥰🦄