Day 42, M.I.A

I really must apologize for those of you who follow my blog, and expect a semi regular posting of updates. I honestly do get an overwhelming feeling of responsibility towards my blog, to the people who I am sharing with. My goal was to be able to share EVERY part of my journey while it was happening.

I think I was a bit ambitious… as most things are that I set out to do.
Not realizing that every year, month, even days, cancer will continue to make my life and the things in it that I once thought ‘simple’…a little more of a challenge. 

Most of you have probably gathered from my last couple of posts
“Leaving Today” & “What’s going on – 2016” that I am participating
in a radiotherapy clinical trial, called PRRT. As of October, things got a little bit busy…
When November hit, it was like an instant ON switch flipped, then someone pressed GO!
Everything just got out of control, things got real. 

You never know just how difficult something will be until you actually go through it,
that’s why here I am writing to you all 42 days post treatment, only now having the mental stamina and energy in order to begin sharing, thinking, or doing anything besides …. well, suffering. Did I say suffering? I meant convalescing. Hehe.. I may even be getting some of my sarcasm back.

So, the point is… I wanted to let everyone know that although I am not what you would call ‘okay’, I am here, and doing my best to adapt to this new phase of treatment. I figured since I am now in a place where I can finally see the screen without the words being blurry, or stay awake for more than 5 minutes in a row, and not be distracted by the pain of my kidneys feeling like they’re going to erupt… I should give a small update of where I am currently. That might be nice, since I am not quite at the point where I am able to give the breakdown of what PRRT therapy IS yet & all of the details of what it entails
(future post *coming soon* I PROMISE!) 

Update:
Since getting home from having radioactive therapy mid November… 
 
-I’ve been bed ridden
-Unable to leave my upper floor
(well, I’ve managed to now leave the upstairs a total of 3 times in 42 days)
-My body has went through every side effect and stage of pain imaginable listed as a potential option, and I think made up it’s own list to add 
-We have had to get a team of people to help with my care 
-I am starting to feel a tiny bit better, I’m no longer having pheo attacks every half hour (*more like every few hours now*) and I can eat now without nausea most of the time, I am able to go pee without feeling like I’m going to have a heart attack afterwards (well, SOMETIMES)…!, we are making a bit of progress. I won’t get too far ahead of myself here. 

Of course when I give my detailed post about PRRT I will write way more about my symptoms, side effects, and current state, super in depth by date and comparisons. Right now I just wanted to let everyone know that this has been incredibly tough on me and this is the reason why I have been completely unable to communicate.

This treatment is done in rounds, which means I am coming up on my next one in January, probably why I am starting to feel a little bit better, ha! My body is finally to begin to have a bit of strength for the next blast.

Nonetheless, this is where we are currently, and why I have been unable to communicate with the rest of the world. Those of you who have kept in contact with me despite my hiding out, bless you and your concerns

If I haven’t been able to answer you or gotten back to you, please know that I am thinking about you and appreciate your words, prayers, and messages so so much.
I have read every single one of them.

I love you all, 

Fabulous 
XOX 

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Coming soon… 
A detailed overview of my PRRT clinical trial

Remedy for the rare: PRRT (Overview) 

6 thoughts on “Day 42, M.I.A

  1. Happy to see you’re getting a bit better..in time for Xmas! Hope you enjoy the holidays the best you can and get some well needed rest too.
    🌹
    My best wishes to you and Serge in this holidays season and the year to come 🕊

    KL

    Liked by 1 person

  2. Do know when you go quiet and are barely surviving that we “know” that what you are dealing with is enormous and you need all your strength to get through another day. I truly hope the PRRT treatment is hitting those tumors hard and will soon give you a pleasant day again . . . OXOX
    Cathy

    Liked by 1 person

  3. Dear Miranda, my wish for you is to be feeling much better this holiday week so you can enjoy making special memories with your family and friends! I” sending healing energy and prayers your way for your upcoming treatment in the new year…thinking positively for you that this will mark a new beginning on your healing journey! Thank you for sharing your life and for being FABULOUS! Love and Light! ❤️️

    Liked by 1 person

  4. You are Fabulous! I am praying and sending wishes that you will get stronger and feel better everyday. God Bless you during your medical journey ……and Merry Christmas🎄

    Like

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