May 24, 2017May 24, 2017 pheofabulous

I said I would never do that again 😭

May 21, 2017May 22, 2017 pheofabulous

4th..5th time? I’ve lost count! IS a charm 💛✨

March 13, 2017March 13, 2017 pheofabulous

And we leave for round 3 – PRRT

February 27, 2017February 27, 2017 pheofabulous

I really need your help…Rare Disease Day

June 25, 2016June 25, 2016 pheofabulous

Your Money or Your Life

June 7, 2016June 8, 2016 pheofabulous

Dear husband…

March 29, 2016 pheofabulous

I’m still slowly picking up the pieces…

March 22, 2016 pheofabulous

It’s been a while ..

February 29, 2016February 29, 2016 pheofabulous

I am rare – Rare Disease Day

February 1, 2016 pheofabulous

Remedy for the Rare – MIBG

January 20, 2016January 20, 2016 pheofabulous

MIBG Therapy – it’s here

January 11, 2016 pheofabulous

Day 1 – bone marrow collection

January 10, 2016 pheofabulous

Pain pain go away…